Wednesday, December 30, 2009

Getting it

Would it help you to get it if I say...
90% of oral language development is finished by age 5...Sadie will be 5 in April and says mama dada aahhh (open) moe (more) daaaiee (Daisy)
Genetically, she will NEVER be able to have children, assuming that she is able to reciprocate in a relationship.
She will not go to college.
She doesn't poop in the toilet.
She would just as easily pee in a diaper as on the carpet.
She CANNOT dress herself AT ALL.
She cannot go up/down stairs unattended.
She will pull a hot pot of water on herself (she doesn't understand danger).
She will wrap a cord around her neck.
She will put chokable objects in her mouth.
She looks normal, but her brain is not working properly.
Please don't be in denial, it is what it is, we deal with our lot in life.
We love her sooo much and she has accomplished so much in her own small ways. We are so proud of her, but listen people ... Do you hear me? We all are not the same and we are heartbroken that our daughter did not have normal genetic material. If you wonder...or ask like some do...no it didn't come from me or my husband. It was a random occurrence.
And we do love her so much, but that doesn't change the irritation when people starr because she is baby babbling or looking at her funny in the grocery cart because she is trying to bite the frozen green beans. She is different, but the most important thing to remember is the reality of her is that she IS intellectually disabled, but she is a little girl that loves and feels and she belongs to us. Ignoring her disability only pains us and we are open to discussion. But how many times do I have to explain the same thing to the same people. Just love her and don't ignore her that's all we ask.
Enough of my soap box.
Sent from my Verizon Wireless BlackBerry

Time is a Thief

I don't remember the first time I heard the sentiment, "time is a thief." Recently it is heavy on my mind. I haven't post...