Our life, our experience, our history, about my daughter with a rare chromosome disorder. She is missing a small portion of her 8th chromosome, which is called a deletion. She also has a small part of XP added to that. Her karotype or diagnosis is deletion 8p23.3 with extra xp22.2 to the terminal deletion (a new chromosome test summer 2011 changed her karotype to deletion 8p23.2 with extra xp 22.12, essentially meaning more missing chromosome 8 and more added xp). #herrarelife
Showing posts with label music. Show all posts
Showing posts with label music. Show all posts
Monday, July 22, 2013
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Time is a Thief
I don't remember the first time I heard the sentiment, "time is a thief." Recently it is heavy on my mind. I haven't post...
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and the flu panic begins... http://www.cloroxclassrooms.com/downloads/teacher_brochure.pdf
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I'm not sure what's worse... knowing your child is getting sick by the first signs and symptoms or fearing how bad it will be. Eith...
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Since writing the "My Lottery Baby" post, Sadie had a series of GI tests run in November to see if we could find the cause of her ...