I spent Saturday and Sunday with friends at a Creative Memories weekend retreat. When I got home Sunday evening, Sadie said, "DAD" for the very first time. This wasn't a babbling dada, it was clear as can be DAD. How amazing!
A few days ago, Sadie and Shelbi were so cute holding hands and pulling each other in circles around the room. I know Shelbi was sent here to love and be a companion to Sadie. They are so sweet and Shelbi is becoming our little helper with Sadie, even at 15months. Earlier today Shelbi walked in the other room to get Sadie's 'froggy' for her nap because I asked her to get it for mommy.
Our life, our experience, our history, about my daughter with a rare chromosome disorder. She is missing a small portion of her 8th chromosome, which is called a deletion. She also has a small part of XP added to that. Her karotype or diagnosis is deletion 8p23.3 with extra xp22.2 to the terminal deletion (a new chromosome test summer 2011 changed her karotype to deletion 8p23.2 with extra xp 22.12, essentially meaning more missing chromosome 8 and more added xp). #herrarelife
Time is a Thief
I don't remember the first time I heard the sentiment, "time is a thief." Recently it is heavy on my mind. I haven't post...
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and the flu panic begins... http://www.cloroxclassrooms.com/downloads/teacher_brochure.pdf
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Sadie has been having spasm type clinch arm and mouth type movements that last about 2 seconds randomly starting in June. For the past mont...
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Today I was feeling the need to read other stories about other children with chromosome disorders. I googled blogspot to see if I could find...