So the girls rarely watch TV and it is really not for lack of trying on my part. They just don't seem to be interested. The only thing Shelbi will watch is Signing Time.
So this morning, I turned on Sesame Street...Shelbi said nooooooooo...moooosssic. Who's that sound like? My husband.
I change the channel to 902. We love digital music around here, but I can't remember what type of music is on 902. I just figure that's a good place to start. The 900's are the music channels. Both girls are sitting on the sofa, one on either side of me. The second the music comes on, I see it is the Hip Hop R&B channel, both girls hop up and start dancing. Daddy will be so proud!
Our life, our experience, our history, about my daughter with a rare chromosome disorder. She is missing a small portion of her 8th chromosome, which is called a deletion. She also has a small part of XP added to that. Her karotype or diagnosis is deletion 8p23.3 with extra xp22.2 to the terminal deletion (a new chromosome test summer 2011 changed her karotype to deletion 8p23.2 with extra xp 22.12, essentially meaning more missing chromosome 8 and more added xp). #herrarelife
Time is a Thief
I don't remember the first time I heard the sentiment, "time is a thief." Recently it is heavy on my mind. I haven't post...
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and the flu panic begins... http://www.cloroxclassrooms.com/downloads/teacher_brochure.pdf
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Sadie has been having spasm type clinch arm and mouth type movements that last about 2 seconds randomly starting in June. For the past mont...
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Today I was feeling the need to read other stories about other children with chromosome disorders. I googled blogspot to see if I could find...