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Saturday, December 12, 2009
Friday, December 11, 2009
New things...
Sadie has been showing more interest in the TV. She NEVER EVER used to watch it EVER. Snow White has captured her attention on the DVD at home and in the car.
A few days ago I signed and said No to Sadie, she responded with a modified sign of no and made the "n" sound. It was so awesome to see her copy me. That was the first time she's ever signed NO. Her only sign is more and clapping her hands for yes.
Saving the best new thing for last...Sadie got out of her bed at nap time on Monday. She managed to unlock the latch within a minute of being put down. When I left her room she was happy and laying down. I made a drink and walked to the sofa to catch up on my DVR shows. I immediately hear her calling MaMa in the kitchen. I couldn't believe it.
Well, sadly, this was end of nap time. I guess I was thinking it would end sooner or later for her, after all she'll be 5 soon. The big new thing happened at bed time when I went to lay her down. She had a normal developmental response and didn't want me to leave her. I guess this happens a lot earlier in life Shelbi always had separation anxiety, but Sadie was always happy to have her space at nap and bed time. She went completely hysterical and cried so hard. I couldn't bare to close and latch the door after that so I got the drill and took the door off. After 3 hours of her crying and using the Super Nanny back to bed routine, she finally fell asleep on the poof chair in the room adjoining her room. I picked her up while she was sleeping and laid her in bed. The next night we went through the same, except I attached a gate with eye bolts and cable ties around and to her bed. So the most logical place for her to go would be to stay in her bed. It worked and she cried 50 minutes. By Wednesday night she fell right to sleep after laying her down and she didn't cry at all. She went right back to her normal 11 to 12 hour nightly sleep. I am really missing the 20 minutes to an hour nap time in the middle of the day though.
A few days ago I signed and said No to Sadie, she responded with a modified sign of no and made the "n" sound. It was so awesome to see her copy me. That was the first time she's ever signed NO. Her only sign is more and clapping her hands for yes.
Saving the best new thing for last...Sadie got out of her bed at nap time on Monday. She managed to unlock the latch within a minute of being put down. When I left her room she was happy and laying down. I made a drink and walked to the sofa to catch up on my DVR shows. I immediately hear her calling MaMa in the kitchen. I couldn't believe it.
Well, sadly, this was end of nap time. I guess I was thinking it would end sooner or later for her, after all she'll be 5 soon. The big new thing happened at bed time when I went to lay her down. She had a normal developmental response and didn't want me to leave her. I guess this happens a lot earlier in life Shelbi always had separation anxiety, but Sadie was always happy to have her space at nap and bed time. She went completely hysterical and cried so hard. I couldn't bare to close and latch the door after that so I got the drill and took the door off. After 3 hours of her crying and using the Super Nanny back to bed routine, she finally fell asleep on the poof chair in the room adjoining her room. I picked her up while she was sleeping and laid her in bed. The next night we went through the same, except I attached a gate with eye bolts and cable ties around and to her bed. So the most logical place for her to go would be to stay in her bed. It worked and she cried 50 minutes. By Wednesday night she fell right to sleep after laying her down and she didn't cry at all. She went right back to her normal 11 to 12 hour nightly sleep. I am really missing the 20 minutes to an hour nap time in the middle of the day though.
Monday, December 7, 2009
Age
I just realized that today Sadie will be 5 years old in exactly 4 months. Wow! I love you baby!
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Sometimes
Sometimes I wish Sadie had a physical marker for her disability. It is exhausting explaining a chromosome disorder and Intellectual Disability to someone who sees nothing physically wrong with her. No one seems to understand and it is getting very frustrating. And they really don't care to understand. Everyone goes about their life in their own bubble secretly thinking this can't happen to them and pretending it doesn't exist or affect them. Oh shall we all be so lucky to be so naive.
If raising children is supposed to take a village then it is awfully lonesome. Thank goodness Sadie has a Medicaid waiver.
Sincerely,
A mother with a disabled child and everyone else is too afraid to touch her. She is the most wonderful, innocent child, full of kisses and hugs, eager to be held, and eager to look you eye to eye with her big blue eyes. I would trade anything to give her the power to learn.
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Thursday, December 3, 2009
Sooo tired
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Santa at the Aquarium
On November 29, we saw Santa at the Aquarium. Sadie doesn't understand Christmas or Santa yet, but she did have fun meeting someone new and saying hello. She blew Santa a few kisses and sat in his lap for a minute.
I'm so excited that Shelbi is interested in Christmas and Santa. It seems a long time coming for me to feel excited about having children during the Christmas season. I was so eager to do all the fun thing you do with children this time of the year that it has been disappointing to know that Sadie doesn't understand, but at the same time so joyful to see Shelbi show interest. And while Sadie might not really understand, she is enjoying going to see the man in the big red suit and getting joy out of seeing him either way.
Oh, this can't go without being said...Santa waved Meggie over to sit on his lap...honestly Santa?
staple removed
Sadie had her staple removed from her head November 27, 8 days after getting it put in. I got myself completely worked up about having it removed. When we went in to the exam room, I warned the nurse that Sadie would be difficult and she would cry and that she needed backup nurses to hold her down. Two other nurses came in and we looked at each other trying to get a game plan for the removal. I was holding Sadie in my lap facing me. Mary, our favorite nurse, wanted to see where the staple was. Sadie was so calm and when I lifted her hair the other nurse said quick pull it out (with the removal tool). Within 2 seconds the staple was removed before Sadie even budged. I was so relieved.
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