Ok, so this might make me wishy washy, but oh well....I opened the blog back up to the public again after hearing my hubby's argument about all the people who have been comforted by reading Sadie's Story.
For the psychos out there who think Sadie is Sadie because we had beer in Italy when she was conceived, well my good friends would know exactly what I would say about that...so I'm going to leave that at that. @#$% you.
So Sadie kept her cast on for about 2 weeks, after a follow up visit to the ortho (who I just adore), he took another xray and couldn't find anything wrong with her foot. Was probably a sprain, tendonitis, or an ache, we just don't know. Anyway, she is not limping anymore and seems to be just fine.
We will be having her fitting for new DAFOs soon, just to wear at night to keep her tendons stretched. Oh i love getting her casted for those fittings.....NOT.
Anyway, hard to believe my baby will be 6 soon, and starting Kindergarten next year too. All day school...I won't know what to do without her all day....Maybe finally rest a little.
Our life, our experience, our history, about my daughter with a rare chromosome disorder. She is missing a small portion of her 8th chromosome, which is called a deletion. She also has a small part of XP added to that. Her karotype or diagnosis is deletion 8p23.3 with extra xp22.2 to the terminal deletion (a new chromosome test summer 2011 changed her karotype to deletion 8p23.2 with extra xp 22.12, essentially meaning more missing chromosome 8 and more added xp). #herrarelife
Time is a Thief
I don't remember the first time I heard the sentiment, "time is a thief." Recently it is heavy on my mind. I haven't post...
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and the flu panic begins... http://www.cloroxclassrooms.com/downloads/teacher_brochure.pdf
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Sadie has been having spasm type clinch arm and mouth type movements that last about 2 seconds randomly starting in June. For the past mont...
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Today I was feeling the need to read other stories about other children with chromosome disorders. I googled blogspot to see if I could find...