It's gotta be the funny things that you just can't do anything about that get me through this. A few weeks ago, Sadie was able to squeeze her skinny long arm into the "child proofed" lock on the cabinet and grab the pepper box. Now, anyone who knows me well enough will tell you that I'm slightly neurotic about keeping at least one eye on my children at all times. Well, Sadie seems to always find a way to get into what ever is around that we just don't want her to touch. In that one second, before I could grab it from her, she was able to empty a box of pepper in the middle of her lap, sitting in the "W" sit and poof, pepper dust was everywhere. What's a mom to do? I just sighed and said, "Oh Sadie." I picked her up and stripped her exactly where she was and redressed her. Then I went back and swept the emptied box of pepper. As I'm sweeping that last little bit of dust of the floor, I hear a squish squish sound. You know, the sound of the very last squeeze of shampoo out of the very empty bottle. Again, only a minute could have gone by and I am so good about putting the shampoo high in the shower, just for those exact moments when Sadie is trying to get into mischief. I run to the bathroom (all 5 feet away from the kitchen) and there she sits in her newly changed outfit in the bottom of the tub, COVERED in strawberry shampoo. On the bright side, she and the next load of laundry, including the pepper covered clothes smelled like strawberries. Oh, I sigh and smile...I love her so much
I'm dreading tomorrow, and procrastinating going to bed because I know it will make tomorrow morning come just that much faster. If you have no idea what I'm talking about, see the link about the cardiology appointment...that's tomorrow...the "procedure."
Our life, our experience, our history, about my daughter with a rare chromosome disorder. She is missing a small portion of her 8th chromosome, which is called a deletion. She also has a small part of XP added to that. Her karotype or diagnosis is deletion 8p23.3 with extra xp22.2 to the terminal deletion (a new chromosome test summer 2011 changed her karotype to deletion 8p23.2 with extra xp 22.12, essentially meaning more missing chromosome 8 and more added xp). #herrarelife
Tuesday, February 16, 2010
Time is a Thief
I don't remember the first time I heard the sentiment, "time is a thief." Recently it is heavy on my mind. I haven't post...
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and the flu panic begins... http://www.cloroxclassrooms.com/downloads/teacher_brochure.pdf
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Sadie has been having spasm type clinch arm and mouth type movements that last about 2 seconds randomly starting in June. For the past mont...
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Today I was feeling the need to read other stories about other children with chromosome disorders. I googled blogspot to see if I could find...