Sunday! A cup of Coffee! Shelbi watching Annie on youtube (because the disc is scratched beyond playing)! Daddy on the couch! Sadie's babbling in the background trying so hard to tell us what the heck she is thinking!
We had a family luncheon yesterday for our GREAT GREAT Aunt Thelma who was married to GREAT GREAT Uncle Bill (Bill's name sake).
Sandwiches, potato salad, chips, and tea...I wish all parties could be that simple and easy. When you get those ladies together, everyone is chatting and catching up. They are all southern gals and chatting is definitely in their blood.
As for us, Sadie brought home that yucky throat virus 2 weeks ago, which was then passed on to Shelbi, which has since passed on to Bill and me. (So we limited our kissing/hugging with the family yesterday). Another day with a preschooler in the house...she's always bringing home germs.
Funny to think, before I had my own children, I said getting germs was good for them because it would make them immune for the future, but now...geezzzzz I would be happy if we all would stay healthy for at least a few weeks...you don't need immunity if you don't catch the germs right? If we could just get Sadie past the stage of putting EVERYTHING in her mouth. It is what it is!!!!!!!!
Our life, our experience, our history, about my daughter with a rare chromosome disorder. She is missing a small portion of her 8th chromosome, which is called a deletion. She also has a small part of XP added to that. Her karotype or diagnosis is deletion 8p23.3 with extra xp22.2 to the terminal deletion (a new chromosome test summer 2011 changed her karotype to deletion 8p23.2 with extra xp 22.12, essentially meaning more missing chromosome 8 and more added xp). #herrarelife
Time is a Thief
I don't remember the first time I heard the sentiment, "time is a thief." Recently it is heavy on my mind. I haven't post...
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and the flu panic begins... http://www.cloroxclassrooms.com/downloads/teacher_brochure.pdf
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Sadie has been having spasm type clinch arm and mouth type movements that last about 2 seconds randomly starting in June. For the past mont...
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Today I was feeling the need to read other stories about other children with chromosome disorders. I googled blogspot to see if I could find...