Her Rare Life

Our life, our experience, our history, about my daughter with a rare chromosome disorder. She is missing a small portion of her 8th chromosome, which is called a deletion. She also has a small part of XP added to that. Her karotype or diagnosis is deletion 8p23.3 with extra xp22.2 to the terminal deletion (a new chromosome test summer 2011 changed her karotype to deletion 8p23.2 with extra xp 22.12, essentially meaning more missing chromosome 8 and more added xp). #herrarelife

Saturday, September 5, 2009

School Starts Tuesday

On Tuesday, Sadie is attending public preschool in a pilot program called Reverse Mainstreaming. The goal is to have an inclusion class for the preschoolers. They are having 6 special ed students and 6 typical developing students as models in the classroom. We are so excited to have Sadie in this new program. She is such a social and happy little girl. We want her to enjoy life and learn from seeing her peers do regular and normal activities. Yay!!!

Saturday, September 5, 2009

School Starts Tuesday

Time is a Thief