Day at the Beach

Killing time between doctor appointments at the park

Geneticist appointment in the a.m. And PCP in the p.m. We got lucky and spent a great 45 minutes enjoying the sun and beautiful weather.
There's a newer better Microarray test that shows the bands of genes on a chromosome up to 2,000,000. It's called the SNP (pronounced snip) Microarray. The last test Sadie had a year and a half ago was the CGH Microarray, which showed up to 1,000 bands.
This is so important because genes control more than just hair and eye color, they also control, block, and communicate (epigenetics) with tumor receptors, cancer, other medical issues that might come up. Knowing which genes are missing, in Sadie's case, will help us keep a close eye on any potential medical issues. We know that Sadie is missing the gene that suppresses bladder tumors. So we will monitor her bladder.
Etc etc etc....
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Pool

All wet, all dressed, in the pool!
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School

I was responding to a question about preschool to Kindergarten. I
figured I might post this, especially after writting it down...this
was her path from private inclusion to now public "reverse
mainstreaming" (inclusion)

Well, Sadie had a wonderful experience at All Saints in the 2s class
and the director Dee was very open to having inclusion. However
wanting inclusion and having teachers willing to teach it, well that's
a whole different set of issues.
Sadie was in the 2s from Jan to May 2008. When she started in Sept
2008 in the next group up, one of the teachers actually refused to
teach in the same room as Sadie. She very bluntly stated that children
like Sadie belong in a special ed self contained classroom. We were
shocked and beyond belief that the director stood for that behavior,
especially when she told us she wanted Sadie at her school. The
director moved the teacher to another classroom and we continued
there. Sadly, the other teachers let Sadie play alone while they
engaged the other students. They even went as far to tell us that we
should only bring Sadie to school in the morning after she had a BM.
As if we really had control over that!
Ultimately, we moved her out of All-Saints at the end of November '08
and she started self contained at JBDey. Jan-June '09. We felt like
they were good enough, but still not the environment we wanted. That
drove me to look in to other preschool inclusion options. Donna Robel,
along with Susie OConnell met with the VB special ed dept. And
ultimately they were working on a pilot "reverse mainstreaming class"
modeled after Chesapeake.
Now, Sadie is at Birdneck, with the most amazing teachers in an
inclusion class, 6 sp ed and 6 typical.
My advice is to push for another year of preschool. How old is your
child, birthday? As long as they are 5, they should be able to go to
preschool. You might do some research and see if you can call an IEP
meeting (in writing). See what the team recommends, try to stand your
ground, find all your options!
Maybe someone who knows the answer about the age allowed in preschool
can respond!

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Lisa

Sadie's Blog: http://sadie8p23point3.blogspot.com/

Shelbi's Blog: http://babybeachgirl.blogspot.com/

Sadie's school

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Lisa

Sadie's Blog: http://sadie8p23point3.blogspot.com/

Shelbi's Blog: http://babybeachgirl.blogspot.com/

Adjectives

What adjectives would you say describes this photo?

R-word

So a drunk stranger on a bike yelled a R-word joke as he passed our street. Some might say don't be so sensitive, others might say wouldn't it hurt you if you have an intellectually disabled daughter, who is the most loving, beautiful, innocent little child. Did you know that she didn't choose her intellect, did you know that people are injured, or perhaps people grow old and can't remember, perhaps you are still young and when you do something silly...you say that word. Do you mean it positively? How about saying a joke about the most vulnerable people, who are the most loving. I'm just saying...maybe you should think twice...
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