What adjectives would you say describes this photo?
Our life, our experience, our history, about my daughter with a rare chromosome disorder. She is missing a small portion of her 8th chromosome, which is called a deletion. She also has a small part of XP added to that. Her karotype or diagnosis is deletion 8p23.3 with extra xp22.2 to the terminal deletion (a new chromosome test summer 2011 changed her karotype to deletion 8p23.2 with extra xp 22.12, essentially meaning more missing chromosome 8 and more added xp). #herrarelife
Sunday, April 25, 2010
R-word
So a drunk stranger on a bike yelled a R-word joke as he passed our street. Some might say don't be so sensitive, others might say wouldn't it hurt you if you have an intellectually disabled daughter, who is the most loving, beautiful, innocent little child. Did you know that she didn't choose her intellect, did you know that people are injured, or perhaps people grow old and can't remember, perhaps you are still young and when you do something silly...you say that word. Do you mean it positively? How about saying a joke about the most vulnerable people, who are the most loving. I'm just saying...maybe you should think twice...
Sent from my Verizon Wireless BlackBerry
Sent from my Verizon Wireless BlackBerry
Thursday, April 22, 2010
Back Yard
So to sign back yard, you throw your thumb over your shoulder and then wave your flat hand parallel to the ground...back yard...well anyway, we all love spending the afternoons on the deck, playing in the sand, swinging on the swing, and just simply hanging out. We are glad to be home!
We came home from the splint clinic at 330, Sadie was fitted for Polly Wogs, (aka shoe inserts) also made by Cascade the same company that makes AFOs. Pretty neat concept, and I don't have to buy anymore cheap ones from the pharmacy! Plus insurance pays for it and that's aways a bonus!
I love sunny afternoons when it's in the low 70s.
Sent from my Verizon Wireless BlackBerry
We came home from the splint clinic at 330, Sadie was fitted for Polly Wogs, (aka shoe inserts) also made by Cascade the same company that makes AFOs. Pretty neat concept, and I don't have to buy anymore cheap ones from the pharmacy! Plus insurance pays for it and that's aways a bonus!
I love sunny afternoons when it's in the low 70s.
Sent from my Verizon Wireless BlackBerry
Tuesday, April 20, 2010
Dinner
Looking guilty after she dumped a cup of cooked rice all over her the table and put a handful down her dress...so cute anyway. Thank goodness for the dog!
Sent from my Verizon Wireless BlackBerry
Sent from my Verizon Wireless BlackBerry
Friday, April 9, 2010
Thursday, April 8, 2010
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Time is a Thief
I don't remember the first time I heard the sentiment, "time is a thief." Recently it is heavy on my mind. I haven't post...
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and the flu panic begins... http://www.cloroxclassrooms.com/downloads/teacher_brochure.pdf