And with the changing times... The time changed and everyone's internal clock is an hour off.
We've been up at 5 am each morning, but got a little break this morning and Sadie woke us at 5:45am. I guess that's not to bad. So, cheers to making bacon way to early.
Our life, our experience, our history, about my daughter with a rare chromosome disorder. She is missing a small portion of her 8th chromosome, which is called a deletion. She also has a small part of XP added to that. Her karotype or diagnosis is deletion 8p23.3 with extra xp22.2 to the terminal deletion (a new chromosome test summer 2011 changed her karotype to deletion 8p23.2 with extra xp 22.12, essentially meaning more missing chromosome 8 and more added xp). #herrarelife
at the parade
parade Tonight at the holiday parade, which we go to almost every year, 3 tween boys, standing behind us, were loud and obnoxious. They we...
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As usual Schuyler's monster blog hits home as we encounter similar issues. IEPs, feeling of reality and hope. Not knowing is so hard. N...
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The last post described Sadie saying "DAD" for the first time. I regret to say that that has been the only time thus far. Strang...
