Tears of joy, Sadie had a BM on the potty at school today and at home a few times this week!!! Yay Sadie!!!
Sent from my Verizon Wireless BlackBerry
Our life, our experience, our history, about my daughter with a rare chromosome disorder. She is missing a small portion of her 8th chromosome, which is called a deletion. She also has a small part of XP added to that. Her karotype or diagnosis is deletion 8p23.3 with extra xp22.2 to the terminal deletion (a new chromosome test summer 2011 changed her karotype to deletion 8p23.2 with extra xp 22.12, essentially meaning more missing chromosome 8 and more added xp). #herrarelife
Wednesday, September 30, 2009
Tuesday, September 22, 2009
Dada
Sadie has randomly said Dada just a handful of times in her short 4 1/2 years, but tonight she said Dada over and over and over again. She stood in the hallway and literally yelled Dada toward the family room where he was sitting with Shelbi. I just kept encouraging her by saying where's Dada and say Dada while pointing to my mouth! Such a wonderful feeling!!! I can only imagine how happy that makes Daddy.
Sent from my Verizon Wireless BlackBerry
Sent from my Verizon Wireless BlackBerry
Friday, September 18, 2009
Delayed Response
Dear Friends and Family,
Forgive me as I am typing on my Blackberry. If I had only gotten a Netbook and a cheap phone, I'd be typing easier on the comfort of my couch rather than getting a cramp in my pinky finger while I try to hit the right keys with my thumb nails on my phone.
Sadie's EEG results came back after the Labor Day weekend...NORMAL!!!! Yay!!!!
So this means, she is having little quirky behaviors. I guess that's not too bad. It just gives people more to stare at?!
As far as school goes, she is having a wonderful time and seems to have adjusted well. (Ouch my pinky is hurting). She is attending a Reverse Mainstreaming class (Inclusion) Monday to Friday. The teachers are amazing and so is the speech therapist. Sadie is working on many functional skills and assistive technology (buttons that say words for her). She is getting OT and PT also. I'm really enjoying my time with Shelbi especially knowing Sadie is being taken care of so well!!!
Sent from my Verizon Wireless BlackBerry
Forgive me as I am typing on my Blackberry. If I had only gotten a Netbook and a cheap phone, I'd be typing easier on the comfort of my couch rather than getting a cramp in my pinky finger while I try to hit the right keys with my thumb nails on my phone.
Sadie's EEG results came back after the Labor Day weekend...NORMAL!!!! Yay!!!!
So this means, she is having little quirky behaviors. I guess that's not too bad. It just gives people more to stare at?!
As far as school goes, she is having a wonderful time and seems to have adjusted well. (Ouch my pinky is hurting). She is attending a Reverse Mainstreaming class (Inclusion) Monday to Friday. The teachers are amazing and so is the speech therapist. Sadie is working on many functional skills and assistive technology (buttons that say words for her). She is getting OT and PT also. I'm really enjoying my time with Shelbi especially knowing Sadie is being taken care of so well!!!
Sent from my Verizon Wireless BlackBerry
Tuesday, September 8, 2009
Saturday, September 5, 2009
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