Our life, our experience, our history, about my daughter with a rare chromosome disorder. She is missing a small portion of her 8th chromosome, which is called a deletion. She also has a small part of XP added to that. Her karotype or diagnosis is deletion 8p23.3 with extra xp22.2 to the terminal deletion (a new chromosome test summer 2011 changed her karotype to deletion 8p23.2 with extra xp 22.12, essentially meaning more missing chromosome 8 and more added xp). #herrarelife
Wednesday, February 10, 2010
Tuesday, February 2, 2010
Sunday, January 31, 2010
2010 Snow Storm



Thursday, January 14, 2010
Cornmeal Tub
I have cornmeal in a large tub for the girls to play "sand" inside (got the idea from a book). When I got home from picking Sadie up from school, I put both girls in and went back to the car to get other stuff. I forgot I left the tub of cornmeal in the middle of the floor. I couldn't have been outside 30 seconds and Sadie dumped the whole thing out alllll over. I could only laugh and get the camera!
Friday, January 8, 2010
Saturday, January 2, 2010
Strong
Sent from my Verizon Wireless BlackBerry
Road Trip
Sadie had fun too with her attendant. One exception, Sadie had a lot of blow out diapers while we were gone. Sorry Nicole! But either way we had a wonderful time in NC! Thanks to our friends.
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Time is a Thief
I don't remember the first time I heard the sentiment, "time is a thief." Recently it is heavy on my mind. I haven't post...
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and the flu panic begins... http://www.cloroxclassrooms.com/downloads/teacher_brochure.pdf
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Sadie has been having spasm type clinch arm and mouth type movements that last about 2 seconds randomly starting in June. For the past mont...
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A community that excludes even one of its members is no community at all. --Dan Wilkins, poet and motivational speaker in September 2006...