Oops, just realized I haven't posted in quite awhile. Something fun to post about...the snow. We got nearly 10-12 inches from the storm. We hardly ever get snow, and while it's fun to look at and look forward to, I don't look forward to being cooped up in the house for 3 days. And, we just got the phone call the school is cancelled tomorrow too. We ventured out in it yesterday for a little bit, not too long though...it is just too cold. Here are some photos and as Memaw said, "we made some memories."
Our life, our experience, our history, about my daughter with a rare chromosome disorder. She is missing a small portion of her 8th chromosome, which is called a deletion. She also has a small part of XP added to that. Her karotype or diagnosis is deletion 8p23.3 with extra xp22.2 to the terminal deletion (a new chromosome test summer 2011 changed her karotype to deletion 8p23.2 with extra xp 22.12, essentially meaning more missing chromosome 8 and more added xp). #herrarelife
Time is a Thief
I don't remember the first time I heard the sentiment, "time is a thief." Recently it is heavy on my mind. I haven't post...
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and the flu panic begins... http://www.cloroxclassrooms.com/downloads/teacher_brochure.pdf
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Sadie has been having spasm type clinch arm and mouth type movements that last about 2 seconds randomly starting in June. For the past mont...
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Today I was feeling the need to read other stories about other children with chromosome disorders. I googled blogspot to see if I could find...