Omg-
Sadie said bye bye to a church lady as she was trying to get in her office. I said, say bye bye- she said it.
Tears of joy over such a big accomplishment. :-) way to go Sadie. I love you so much.
"Everybody is a genius. But if you judge a fish by its ability to climb a tree, it will live its whole life believing that it is stupid" ~ Albert Einstein
Sent from my iPhone
Our life, our experience, our history, about my daughter with a rare chromosome disorder. She is missing a small portion of her 8th chromosome, which is called a deletion. She also has a small part of XP added to that. Her karotype or diagnosis is deletion 8p23.3 with extra xp22.2 to the terminal deletion (a new chromosome test summer 2011 changed her karotype to deletion 8p23.2 with extra xp 22.12, essentially meaning more missing chromosome 8 and more added xp). #herrarelife
Tuesday, June 5, 2012
Monday, June 4, 2012
our monday
The day started off dropping Shelbi off at summer morning camp. Only 3 hours to get to the grocery store and Occupational Therapy for chewing therapy and back to pick Shelbi up at noon.
Wednesday, May 30, 2012
Friday, May 25, 2012
Friday, May 18, 2012
when I'm 7
In our normal routine, the girls played on the swing set last evening before dinner. Because of muddy feet and knees, the girls took a bath together.
These days, I've encouraged Shelbi to bathe alone so that both girls can have some privacy separate from each other. Tonight was different simply because they both had muddy feet.
After their bath, I was getting Sadie dressed and I didn't realize it, but Shelbi was watching me. She was already quickly dressed. Sadie must have been making her normal vocalizations. Shelbi asked, "Mommy, when I'm 7, will I be like Sadie."
Taken back, I said, "Baby girl, what do you mean, will I be like Sadie?" She said, "Will I start saying, 'babababa?"
I hugged her after that and tried to reassure her that she didn't have a disability, and that she would be able to talk when she turns 7.
Trying to explain that to a four year old is tough, but feeling it as I'm explaining it, reminds me that Shelbi is every bit, living this life, as I am.
Saturday, May 12, 2012
Saturday, April 21, 2012
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