I have cornmeal in a large tub for the girls to play "sand" inside (got the idea from a book). When I got home from picking Sadie up from school, I put both girls in and went back to the car to get other stuff. I forgot I left the tub of cornmeal in the middle of the floor. I couldn't have been outside 30 seconds and Sadie dumped the whole thing out alllll over. I could only laugh and get the camera!
Our life, our experience, our history, about my daughter with a rare chromosome disorder. She is missing a small portion of her 8th chromosome, which is called a deletion. She also has a small part of XP added to that. Her karotype or diagnosis is deletion 8p23.3 with extra xp22.2 to the terminal deletion (a new chromosome test summer 2011 changed her karotype to deletion 8p23.2 with extra xp 22.12, essentially meaning more missing chromosome 8 and more added xp). #herrarelife
Thursday, January 14, 2010
Friday, January 8, 2010
Saturday, January 2, 2010
Strong
And yet, I found I could survive. I was alert, I felt the pain--the aching loss that radiated out from my limbs and head--but it was manageable. I could live through it. It didn't feel like the pain had weakened over time, rather that I'd grown strong enough to bear it. ~ New Moon by Stephanie Meyer
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Sent from my Verizon Wireless BlackBerry
Road Trip
We rang in the New Year at our friends' house in NC with only Shelbi. We needed some space and we felt like Shelbi needed some also, so we left Sadie home with a babysitter. Shelbi had a wonderful time playing with all the other kids and it warmed my heart to see her in that environment. She played super hard!
Sadie had fun too with her attendant. One exception, Sadie had a lot of blow out diapers while we were gone. Sorry Nicole! But either way we had a wonderful time in NC! Thanks to our friends.
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Sadie had fun too with her attendant. One exception, Sadie had a lot of blow out diapers while we were gone. Sorry Nicole! But either way we had a wonderful time in NC! Thanks to our friends.
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Wednesday, December 30, 2009
BM
Oh and she pushed the "go potty" button and Sadie's attendant got her to the bathroom in time to go BM on the potty.
Sent from my Verizon Wireless BlackBerry
Sent from my Verizon Wireless BlackBerry
Juice
Sadie just pushed juice on the twin talk and brought me the vecroed picture saying more (moe moe moe).
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Sent from my Verizon Wireless BlackBerry
Typo
Meant didn't in place of did with respect to if this originated from me or daddy.
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Sent from my Verizon Wireless BlackBerry
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