After watching Frozen twice, they finally went out for a quick run in the snow. Of course takes one kid at a time to bundle up. Sadie was being impatient, but it was rather cute when she realized the deck was freezing and she ran back inside. I got her dressed and the first thing she wants to do is sit and eat snow.
Our life, our experience, our history, about my daughter with a rare chromosome disorder. She is missing a small portion of her 8th chromosome, which is called a deletion. She also has a small part of XP added to that. Her karotype or diagnosis is deletion 8p23.3 with extra xp22.2 to the terminal deletion (a new chromosome test summer 2011 changed her karotype to deletion 8p23.2 with extra xp 22.12, essentially meaning more missing chromosome 8 and more added xp). #herrarelife
Monday, March 3, 2014
herrarelife with a dog
As they say, cleaning up after kids at this age is like brushing your teeth
while eating Oreos, and so pretzels are not on my grocery list this week. My daughter will snack on many things. Sometimes she will eat chips,
sometimes she won't. Sometimes she will keep her snack in the cup and
other times the cup is emptied on the floor. Most of the time our dog
Daisy is our little vacuum and will eat the snacks that Sadie spills. I
was reminded this week that pretzels and cheese crackers are not going on my
grocery list for a while. I can't imagine having Sadie without Daisy
around. And that's the glorious life with a dog and a child living with a
disability. =)
Labels:
acceptance,
cleanhouse,
Daisy,
disability,
dog,
herrarelife,
rarechromo,
unconditional love
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