Our life, our experience, our history, about my daughter with a rare chromosome disorder. She is missing a small portion of her 8th chromosome, which is called a deletion. She also has a small part of XP added to that. Her karotype or diagnosis is deletion 8p23.3 with extra xp22.2 to the terminal deletion (a new chromosome test summer 2011 changed her karotype to deletion 8p23.2 with extra xp 22.12, essentially meaning more missing chromosome 8 and more added xp). #herrarelife
Tuesday, June 19, 2012
Thursday, June 7, 2012
Green drinks and Sadie
It's a good thing Sadie does not care that her milkshake is green. I added a little extra spirulina on accident and her drink is GREEN! Yummmo and healthy!
Tuesday, June 5, 2012
Bye Bye
Omg-
Sadie said bye bye to a church lady as she was trying to get in her office. I said, say bye bye- she said it.
Tears of joy over such a big accomplishment. :-) way to go Sadie. I love you so much.
"Everybody is a genius. But if you judge a fish by its ability to climb a tree, it will live its whole life believing that it is stupid" ~ Albert Einstein
Sent from my iPhone
Sadie said bye bye to a church lady as she was trying to get in her office. I said, say bye bye- she said it.
Tears of joy over such a big accomplishment. :-) way to go Sadie. I love you so much.
"Everybody is a genius. But if you judge a fish by its ability to climb a tree, it will live its whole life believing that it is stupid" ~ Albert Einstein
Sent from my iPhone
Monday, June 4, 2012
our monday
The day started off dropping Shelbi off at summer morning camp. Only 3 hours to get to the grocery store and Occupational Therapy for chewing therapy and back to pick Shelbi up at noon.
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